Cystic Fibrosis Information

There is no cure. Not yet. Cystic Fibrosis is an incurable inherited disorder, affecting mainly the lungs and the digestive system. In the lungs, where the effects of the disease are most devastating, CF causes increasingly severe respiratory problems. In the digestive tract, CF often results in extreme difficulty in absorbing adequate nutrients from food. It is estimated that one in every 2,500 children born in Canada has CF. For these people, life includes a daily routine of therapy and periodic visits to a CF clinic. Treatment typically includes chest physiotherapy, antibiotics, pancreatic enzymes, nutritional supplements and vitamins, inhalation of aerosol medications, exercise - and often requires hospitalizations.

But there is hope. Through advances in research and clinical care, the average age of those with CF has been raised tremendously - from just a few years in the 1960s to over 30 today. In recent years, remarkable progress has been made in CF research. In 1989, Canadians discovered the defective gene responsible for CF, resulting in an increasingly global assault on the disease, bringing us closer to a solution.

That's where we come in. As Gallivan supporters, you have every right to feel a part of these accomplishments, for it takes involvement at every level to get where we are today. Thanks to events like the Gallivan, we can all feel optimistic that the future will hold a cure or control for CF.

As we celebrate the 35th anniversary of the Gallivan Golf Tournament for Cystic Fibrosis As an example of your support, extraordinary progress has been made in the last 18 months. Some senior scientists, who’ve made it their life’s work to study CF, believe we’re on the verge of redefining cystic fibrosis as a “chronic disease,” not as a fatal disease.

Without doubt, this is a time of historic importance in the CF fight.

Some of you will recall that five years ago, the US drug company Vertex, introduced the first ever drug to attack the cause of CF, not just the symptoms. That drug was suitable for only a sub-set of persons with CF.

Since then, two more drugs for different sub-sets of persons with CF have been introduced and, literally, dozens more drugs are “in the pipeline.”

Meanwhile, in a complementary development, Cystic Fibrosis Canada has launched a campaign to raise $7.5 million over five years to ensure we can rapidly deploy the optimum “cocktail” of drugs – the old drugs and the new drugs -- for each person in Canada with CF. The result will be substantially better care delivered more quickly with better outcomes for CF patients in Canada, and beyond.

None of this would have been possible without support from people like you. The Danny Gallivan Cystic Fibrosis Golf Tournament -- along with the car washes, raffles, dances and concerts – have made the difference.

We’re on the verge of something spectacular. And now’s not the time to let up.

If you have additional inquiries about Cystic Fibrosis, please contact Cystic Fibrosis Canada at (902) 425-2462 (Nova Scotia) or at 1-800-378-2233, or visit www.cysticfibrosis.ca.